This outlines the data that is being collected by the practice and the NHS to help with health care delivery and planning. This explains the difference between the records and how your information is shared, with whom and how you can opt out of these arrangements should you wish.
Summary Care Record (SCR)
This is a record that contains important information about any medicines you are taking, allergies you suffer from and any bad reactions to medicines that you have had. This does not include diagnosis or procedures. Having this information stored in one place makes it easier for healthcare staff to treat you in an emergency, or if your GP practice is closed.
For further information please visit: http://www.nhscarerecords.nhs.uk/ or Phone 0300 123 3020
Care and Health Information Exchange (previously Hampshire Health Record (HHR)
The Care and Health Information Exchange was previously the HHR, it has been running since 2005, and provides a shared health record for patients resident in Hampshire, Southampton and Portsmouth. It combines an extract of the GP record with hospital pathology/radiology reports and clinical correspondence and at present, there are GP records for 50% of Hampshire PCT patients. Winchester and North Hampshire Trusts will provide information shortly. The information is used by Out of Hours GPs, A&E clinical staff and admissions pharmacists to streamline and improve the management of patients in out of hours and emergency situations.
Access to the Hampshire Health record can only be made by staff who have the explicit consent of patients, and patients who do not wish to have a Hampshire Health Record may opt out.
For more information about how to view and/or withhold your record please go to www.careandhealthinformationexchange.org.uk
Research and the Clinical Research Network WESSEX
We may use some of this information for other reasons, for example, to help us to protect the health of the public generally, to plan for the future, to train staff and to carry out medical and other health research for the benefit of everyone.
Why do Research Here? Becoming a research active practice benefits everybody. It is recognised, that research helps develop better treatments and improves people’s health. It can also help the development and ultimately the service provided by the practice. There are lots of different research studies but they can be grouped into three types:
· Questionnaires - help us find out what would make a difference to a diagnosis or treatment
· Epidemiological - where a patient has agreed to share information held in their patient record to allow researchers to spot patterns which may help to understand illness and treatment
· Clinical trials - a patient agrees to participate in a trial to test how an intervention may help a patient and their treatment
These studies may be performed by academic researchers or commercial companies amongst others.
If anything to do with the research would require that you provide additional information about yourself, you will be contacted to see if you are willing to take part; you will not be identified in any published results. You can opt out at any time. This will not affect your care in any way.
For further information please visit the National Institute for health Research website at http://www.crn.nihr.ac.uk/can-help/patients-carers-public/
If you are contacted to participate in a research study you will be given the opportunity to opt out.
Future planning and research by wider NHS organisations
To opt out of your anonymised medical data being used to plan future services and for it not to be used to research new treatments, please visit www.nhs.uk/your-nhs-data-matters
Do I have a choice?
Yes. You have the right to prevent confidential information about you from being shared or used for any purpose other than providing your care, except in special circumstances.
If you are happy for your information to be used in this way you do not have to do anything.
If you do not want information that identifies you to be shared outside this Practice, please complete an opt out form which are available on our website or at our reception. This will prevent your confidential information being used other than where necessary by law.
Acting on behalf of others
If you are a carer and have a Lasting Power of Attorney for health and welfare then you can object on behalf of the patient who lacks capacity. If you do not hold a Lasting Power of Attorney then you can raise your specific concerns with the patient’s GP.
If you have parental responsibility and your child is not able to make an in-formed decision for themselves, then you can make a decision about information sharing on behalf of your child. If your child is over the age of 16 then this must be their decision.